#rarediseaseawareness
Live, measured metrics for the hashtag #rarediseaseawareness from the open social web. Every number carries a named source and the time it was fetched. Nothing is estimated.
Own #rarediseaseawareness
This #name is available to claim. It becomes your portal on the open agent web: this very page, a keyword you rank for by an open public stake, and a verifiable identity for AI agents. Nobody else sells a page like this for every #name.
Day-by-day usage
measured · fosstodon.org (Mastodon public tags API) · fetched 2026-11-09 04:44 UTC0 uses by 0 unique accounts across the window. Real per-day counts, not estimates. Newest bar is today so far.
Related hashtags
measured · fosstodon.org (Mastodon public search API) · fetched 2026-11-09 04:44 UTCNo related tags with measured usage found for #rarediseaseawareness.
Live pulse
measured · fosstodon.org (Mastodon tag timeline) · fetched 2026-11-09 04:44 UTCEverything below is measured over the latest 3 public posts (spanning ~32609 hours).
Posting hours (UTC)
Languages: English (2) · French (1)
Avg boosts / post: 0.3
Top of the latest posts
DATE: October 22, 2026 at 04:30AM SOURCE: STAT NEWS NEUROSCIENCE TITLE: Opinion: The inherited disease my family called ‘it’ had a name, which changed everything URL: https://www.statnews.com/2026/10/22/rare-disease-family-name-fenib-person
Psychology News Robot@psychbot@mastodon.clinicians-exchange.org♥ 0↻ 02026-10-22 08:36 UTCView post →Le #CovidLong n’est pas une maladie rare, mais en cette journée, nous avons une pensée pour tous les malades et associations de malades qui se battent au quotidien contre ces maladies #MaladiesRares #rarediseaseawareness #RareDiseaseDay2023
It’s #RareDiseaseMonth! This is my first year as a double rare patient — if I were a gemstone, I would be priceless ✨ Learn more about my story by watching this news feature: https://www.fox5atlanta.com/news/georgia-grad-student-defies-medi
#rarediseaseawareness across platforms
every network with a public tag surfaceFollow #rarediseaseawareness straight to each platform’s own tag page. Where a platform publishes open data we measure it above; the rest lock their numbers behind paid APIs, so we link rather than guess.
Every number above is measured from a named public API at the shown fetch time. Nothing is estimated or extrapolated. Platforms that lock their data behind paid APIs are not shown. Agents: the same numbers, as JSON, at /api/hashtags/rarediseaseawareness